Eleven hours later, I would need two units of blood.
At the time, though, I was focused on the couple across from us in the Moncton ER waiting room. A casually-dressed couple in their 60s, obviously a couple for a long time, as they had a deft, wordless way of moving with each other, of communicating. They were there for him, it emerged: when the blood pressure trolley stopped at their seats, it was his blood pressure that was taken. I assumed their visit had something to do with his leg, as it was in a boot, strapped on with velcro, of the sort that people with a foot or ankle injury often wear.
Because not much goes on in the ER waiting room, I paid them a lot of attention. They shifted seats, got called in, got sent back out, ate snacks, played word games. I was confused by how his velcro-boot kept shifting from his right leg to his left leg. Eventually I realized it was simply because he was crossing and uncrossing his legs—the kind of thing you do a lot in the ER waiting room.
We’d gone over to Moncton for the weekend with Lisa’s parents, to an Airbnb on the outskirts, our Christmas gift to them. The rental was beautiful, a log cabin just enough out of the suburbs to feel rural and isolated, but within 10 minutes of the city proper. It was touch and go whether we’d go at all: I was still in the throes of a two week old chest cold, a cold that had consumed all of my energy and then some; I was exhausted. But, I reasoned, I wasn’t coughing so much, and I was certainly no longer contagious, so even if I was feeling 50%, I figured I might as well feel 50% in a log cabin as anywhere, with family, a hot tub, and wood-burning fireplace at the ready.
I was queasy the entire ride over, and increasingly feeling out of it, but soldiered on regardless. After an overnight in the cabin—a nice supper, a perhaps-foolhardy dip in the hot tub outside at -30ºC—it seemed clear, the next day, that I was getting worse, not better. By late-morning, I was feeling poorly enough that I phoned 811. After a 10-minute triage chat with a nurse, I was told to go to the ER.
And so, at 2:00 p.m., off we headed into the city, Lisa and I, confident that the posted wait times on the ER website of two to three hours would mean we’d be back for supper. At the time I thought I might have pneumonia, or some other chest-cold-gone-wild malady, and might receive antibiotics. Or maybe even just a “take it easy, son; you’ll be better soon.”
On arrival I was ushered into a triage booth and interviewed by a capable nurse. Between the two of us Lisa and I spilled out my symptoms: sick for two weeks, feeling better, then worse; feeling alternately dizzy, queasy, with an unrelenting cough. And, worst and most noticeable, feeling not altogether “there” most of the time. Almost as an aside, I also mentioned rectal bleeding that I’d been experiencing for a couple of weeks, seemingly due hemorrhoids, bleeding that I’d been reassuring Lisa was part of a regular and unconcerning pattern.
Just as we were finishing up, Lisa mentioned to the nurse that my colour had been off, that I sometimes looked pale, or yellow; the nurse agreed, noted that, and I watched her bump me up a triage level, which buoyed my spirits, as I assumed it meant I’d be seen earlier.
And then we waited.
The Moncton ER waiting room is like any ER waiting room anywhere: an unloved holding tank for indeterminately sick people, not unlike an airport waiting room for flights to unpopular destinations. There are two pay telephones, an almost-empty snack machine, a television mounted on the wall, playing only the weather forecast, two washrooms. It is the kind of place that takes your mental health as you arrive and downgrades it, simply from drearily waiting in a space that telegraphs you-don’t-really-matter-all-that-much.
Every hour or so the vitals cart came around to take my blood pressure. Because I had mentioned feeling dizzy, they took it twice every time, once sitting and once standing; orthostatic they called it. And there was a big difference between the two readings.
As the posted wait time came and went, we numbed ourselves to the idea that I’d be seen quickly. We entertained ourselves with Wordle. With snacks from the vending machine, with a failed attempt to order Lebanese food from Skip the Dishes (it simply never arrived) to a successful attempt to order submarine sandwiches from Door Dash. We charged our phones. I went for little walks. We talked, a lot. Lisa is, it turns out, a fantastic person to spend extended time in a waiting room with; as afternoon became evening became midnight, we never got grumpy, never turned on each other.
Finally, at 1:00 a.m., the velcro-boot couple were discharged and, 11 hours after arriving, my name was called. We were invited to walk through the big green doors, and taken into a curtained exam room.
It was only minutes before the doctor arrived, a rumpled man with an inquisitorial bedside manner that caught us unawares. We again spilled out my symptoms, and the doctor dutifully followed us down each path—chest cold, bleeding, colour, feeling out of it—sometimes asking questions that made us feel like we were in a duel. While there may have been—indeed, there was—method to his madness, it felt like an interrogation, especially after 2 weeks of illness, 24 hours of feeling out of it, and 11 hours of waiting room anticipation.
“We’ll get you taken care of,” he said on his way out.
Our confidence level was not great, and I think we each privately thought he’d written down “loopy couple; stick them somewhere, and then set them free.”
That didn’t happen.
Within minutes we were taken to another room around the corner, one with a throne-like recliner, with a step labelled “no step.” In short order I had many vials of blood drawn, and an ECG strapped to my chest. I was wheeled away for a head CT, and a chest X-ray, both of which happened without any wait at all. While I wasn’t panicking, I realized that we weren’t in ”take it easy, son; you’ll be better soon” territory any longer.
After a return from my visit to radiology, the doctor came back into the exam room.
“You’re anemic”, he announced. “Your hemoglobin is 70, and it should be more than 135. We’re going to need to give you a blood transfusion.”
It seems important at this point to stop and talk about rectal bleeding.
I never thought I’d write publicly about rectal bleeding. Or rectal anything, for that matter. Matters rectal are the undiscovered country of my literary non-fiction.
And yet here I am.
The reason I was in the Moncton ER needing a blood transfusion is directly related to that very same reticence.
Sure, I’d talked to my doctor about rectal bleeding before: it’s what led me to have a colonoscopy at age 36, as with a family history of colon cancer, it was a warning sign. That first colonoscopy didn’t show anything of concern, other than hemorrhoids. At that point, the power of “I don’t have colon cancer!!” was enough to take any attention I might have otherwise paid to the hemorrhoids.
In the intervening years, my hemorrhoids came and went, sometimes bleeding, sometimes not, and, using a not insignificant amount of magical thinking, I ignored them, mentioning them at annual checkups, but never pressing doctors about whether it was a concern or not, and them never saying “hold on, let’s talk more about your hemorrhoids.”
I was ashamed. I was squeamish. I was distracted. I feared whatever treatment might be offered me. Nobody wants to imagine scalpels and lasers in and around the bum.
A blood transfusion takes a long time; I didn’t know that. It started at 2:00 a.m., and I wasn’t released until 8:00 a.m. Lisa, bless her patient heart, was beside me throughout; we grabbed small snippets of sleep, but it was, for most intents and purposes, an all-nighter. There was a surreal quality to it all, knowing that anonymous donors were the source of the lifesaving something that was now dripping into me.
And then it was over.
We emerged into the bright Sunday morning Moncton sunshine, drove back to the cabin, had breakfast, went immediately to sleep. We drove home later the same day.
In the intervening weeks I’ve learned just how precarious having a hemoglobin level of 70 can be, had my blood and urine tested (hemoglobin up to 90, then, two weeks later, up to 123: a healthy trending up, but not yet optimal; all other metrics at “you’re in the prime of health” level—my nurse practitioner referred to my cholesterol level as “lovely”), I’ve had two iron infusions in the hospital here, plus a colonoscopy, ordered and delivered in record time.
The colonoscopy, absent the purgative prep, was a not unenjoyable experience that I watched on HDTV with fascination. The post-operative notes start “everything looked good,” and today I learned that the three polyps that were removed for analysis were ”tubular adenomas,” not cancerous but rather “the kind of thing that can become cancerous.” Good to have excised—a godsend, in fact, and a silver lining in all this—but, in the end, not the source of what ails me
The current working hypothesis: I have hemorrhoids. That bled. A lot. And I lost enough blood to make me anemic. I’ll go back to my surgeon toward the end of the month to talk about addressing that.
This has all been a chastening experience. For me, for Lisa, for Olivia, and for the circle of family and friends who surround us.
Any sense of embarrassment I once had talking about hemorrhoids has evaporated, now that they’re the talk of the town. This chastening, which I would have likely, at one point, kept entirely to myself, I’m now (sort of) okay writing about.
The sense of shame I have about neglecting my health, to the point of real peril, is something I’m still grappling with; I feel equal parts an idiot, and like I’ve had a lot going on for the last decade, so it’s okay to cut myself some slack.
I have struggled with this blog post; it’s been a draft for three weeks. At first the struggle was how frank to be; once I figured that out, I struggled to turn it into a life-lesson, to tie a neat bow, and come to a satisfying conclusion. But every path I wrote myself down ended up a dissatisfying blind alley; I searched in vain for life lessons, and, so far, have found none.
So I will end not with a life lesson, but with gratitude.
To everyone medical, from the irascible Moncton ER doc, to my nurse practitioner, to my colonoscopy surgeon, to the myriad nurses who’ve drawn blood, and taken my blood pressure, and served me warm blankets.
To my friends and family, who’ve worried about me, asked after me, offered kind words and practical support.
To Olivia, who’s been through too much, and who feared I’d die before my birthday.
To Lisa, who’s loved me all the way through this: she’s managed our household solo while I’ve been down, fed me from vending machines, driven me to appointments, held my hand. She’s bravely jumped into a remarkable pool of vulnerability with me that continues to take my breath away.
And perhaps there is a neat bow to tie this up with: I am so, so happy to be alive.
Colin Nagy writes about the locked groove we can fall into when travelling to familiar places:
We quickly realized that we had a similar problem: the “locked groove” effect of cities you frequent for work or for pleasure. I tend to have long-term affairs with places and am magnetically compelled to return often. The trick is not falling for the things you do every time, or settling into a comfort zone with repeat travel.
I’m guilty of this, stopping every visit for the same shrimp tacos in Milford, NH, for the same grilled cheese at CPH, the same ice cream on Bloor Street. To say nothing of my well-worn path through the stationery ships of Berlin.
I’m travelling next month for the first time in almost four years. While we’re going somewhere mostly unfamiliar, and so mostly free of locked grooves, I’m looking forward to travelling with fresh eyes and a refreshed spirit, avoiding the thematic locked grooves that transcend place.
Prince Edward Island is blessed with a progressive editorial voice in The Eastern Graphic and its publisher Paul MacNeill, whose editorial this week, Haters will never win, calls out the connection between what might be called “Island nationalism” and xenophobia:
The idyllic Island of white Protestants and Catholics, with red mud lanes, an outhouse in the backyard and a home raised chicken in every cooking pot is a puritan vision that ignores how ugly Island life often was.
There are still ugly moments, but we’ve come a long way from the days of yore fondly remembered by some.
What they don’t acknowledge is PEI needs immigration. Our economy would collapse without it because our population for decades has failed to grow to meet even the most basic of workforce needs.
Equally as important, diversity builds vibrant, welcoming communities. Doesn’t mean there will not be growing pains. There will be. But you don’t solve a problem by seeking to throw a protective cloak over the Island.
From Analog Office, Mess Up Your Good, Premium, Luxury Notebooks:
What about those fifth-generation stationers who go to great lengths to source wonderful paper, to find skilled craftspeople who will bind it just right, so that the binding lies flat when you open that notebook?
What if you were the notebook maker? If you went to all that work to design and manufacture a notebook you thought would be totally awesome for someone to use, what would be cooler to you, five or twenty or fifty years from now…
I’ve been this maker. Not of premium luxury notebooks, but of handmade notebooks for friends and family, where the primary special sauce is love, not craft. “Oh, I can’t write in that, it’s too precious!” isn’t the preferred response to such a gift; use it, write in it, mess it up. I can always make you another.
There is a disquieting swell of transphobia here on Prince Edward Island this month, a movement by a small group of parents targeting the Guidelines for Respecting, Accommodating and Supporting Gender Identity, Gender Expression and Sexual Orientation in our Schools.
Gender identity, gender expression, and sexual orientation are challenging concepts for cisgender heterosexual people like me to confront: I was raised by atypically progressive gay-positive parents, but I grew up in a culture that was completely unaccepting and incurious of anything related to the life of 2SLGBTQIA+ people, and frequently dismissive of, and injurious and violent toward, anyone with the tenacity to express their true self publicly.
I am not a model of solidarity; I am an imperfect ally. But I am trying, I am listening, I am reflecting on my own biases, and my part in spreading a cis- and hetero-normative worldview.
I am the proud father of Olivia, an autistic trans-woman. Olivia has worked so hard to find her way toward a way of being in the world that is true to herself, against tremendous pressure to not do so. The intersectional challenges of being trans and neurodivergent are formidable, and the very notion that an autistic person is fully and completely capable of agency over her gender expression, gender identify, and sexual orientation is something she receives pushback on from almost every direction.
When people rally against guidelines that call for my daughter and her peers to be respected, accommodated, and supported, they are engaged in an act of intolerance. They are tacitly saying “we don’t accept you, Olivia.” They are piling on to the mountain of hatred, violence, rejection that makes living life as a trans person so arbitrarily, unnecessarily difficult.
When we choose intolerance over love, ignorance over education, we are not only building prisons for others, we are imprisoning ourselves, cutting ourselves off from the liberating notion that we can all be freed from expectations that how our gender and sexuality manifest should exist in a restrictive narrow band.
Former Prince Edward Island Premier Wade MacLauchlan frequently called Islanders to look to our “better nature,” and this is clearly a time we should heed that call: let us all seek to love all our neighbours, even if—especially if—we are frightened by parts of them we struggle to identify with, to understand. Through dialog, curiosity, courage, openness, we can stanch that fear, that ignorance, and march forward together.
I love my daughter, all the parts of her, all of who she is and is becoming. Please join me.
I was happy to be a source for the article The curious history of 219½ Hunter, Peterborough’s itsy bitsy storefront in Peterborough Currents. 219½ played an outsized role in my life, and it’s nice to see the history of the storefront documented so thoroughly.
We made Ella Risbridger’s Stuck in a Bookshop Salmon and Sticky Rice for supper last night. I’d resolved to make something outside my typical flavour palette and this certainly was: marinated grilled salmon over chorizo- and garlic-infused Thai black rice, a smooth-vs-nutty contrast. It’s from her Midnight Chicken cookbook.
The Saturday “feels like” temperature in Charlottetown is forecast to be -45°C. Oh my.
We lost two wise, compassionate Islanders this week, both dedicated to service.
John Andrew died on Tuesday. I met John when he ran for the Green Party following the death of Josh Underhay, and found him a shy, intelligent, thoughtful person. His eyes lit up when, standing in his front yard, overlooking Andrew’s Pond, he talked about the history—human and natural—of the area. I’d always hoped, in the years since, to catch John’s eye as I canoed that pond; I’d have welcomed the opportunity to thank him for his dedication to enhancing such a brilliant and storied natural area within the city limits.
Two days later Mait MacIsaac died. I met Mait only a few times, through PEI Home and School Federation, an organization he held dear, and to which he devoted much effort. Mait was a legendary educator; I was a direct recipient of the spirit described in his obituary: “Mait was genuinely curious, could connect with anybody of any background and possessed a knack of asking just the right question or spending whatever time it took to listen.” We are blessed to live in a province where so many educators, after retirement, take what they’ve learned from their formal careers and devote their lives thereafter to sharing, reflecting, discussing, improving; Mait was at the head of that class.
John, Mait, you will be missed.
I am entering week two of the Mother Of All Chest Colds.
Things started off slowly, a week ago Wednesday, with a fever of 38.6ºC for about 12 hours; the fever broke, all was well. I made English muffins. I cleaned up the back yard.
Friday was fine. Bullet dodged!
On Saturday, though,I developed a sore throat, a cough, and ever-worsening congestion; my time since then has focused primarily on phlegm management. Bonus symptoms: headache, fatigue, lethargy. The congestion’s risen up into my sinuses a few times, then settled back into my chest.
A trip to the nurse practitioner on Thursday showed my vitals are good, I’ve not got pneumonia, and, as it’s likely a virus at play, I’ve no choice but to wait it out. She reported that she’s seeing cases last as long as three weeks. Ugg.
For those of you similarly stricken, some tips from the field:
- Cepacol lozenges are the best I’ve found. They’re also less popular, so more likely to be in stock when brands like Halls are missing from store shelves.
- Mucinex was a help when I needed to loosen things up, and clear my most-congested chest. The only downside was that my nose ran for hours and hours.
- I’ve never been a taker of pain-relievers, but Advil has been my friend this week; I wouldn’t have been able to sleep without it.
- Secaris is a nasal lubricant I picked up on the recommendation of a clerk at Murphy’s Parkdale Pharmacy (it’s on the back wall near the cough drops); it really help when long nights of nose-blowing resulted in a raw nose.
- Head-over-boiling-water-in-a-bowl has really helped, a couple of times a day.
Every time I think I’m clear of this beast, it rears its head again; fortunately for the past three nights I’ve been able to sleep clear-through, which has been a big help (before then I was spending long stretches of the night on the couch, coughing).
This is the longest I’ve been sick in years, and compared to COVID, which, for me, was a walk in the park, this virus packs a wallop.
Wish me luck.