It’s PSC Awareness Day, Frank reminds us.
From his blog marking today (in translation):
What is PSC?
PSC is a rare disease. There are just over 1,000 cases known in the Netherlands and around 100,000 worldwide. It is a progressive and chronic disease. This means that over time the symptoms become more severe and that there is no medicine for it yet. The treatment of PSC mainly focuses on preventing the symptoms of the disease. Since the beginning of the diagnosis, I have been taking ursodeoxycholic acid (Ursochol) and fortunately it visibly slows down the disease process. My liver functions are improving slowly but surely, as we see in the blood values every few months. But I’m not the old Frank anymore. PSC is a part of my life and will not go away. That’s why every year with Global PSC Awareness Day, an update on how I’m doing now.
PSC Partners has a good overview of the disease.
About This Blog
I am Peter Rukavina and this is my blog. I am a writer, letterpress printer, and a curious person.
To learn more about me, read my /now, look at my bio, listen to audio I’ve posted, read presentations and speeches I’ve written, or get in touch (peter@rukavina.net is the quickest way).
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